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Travelling with M.E.

Travelling with M.E.
I will be embarking on a journey from my home at "The Beach" in Australia, to "The Apartment" in America

Friday, July 27, 2012

Slowly Winding Down

Like a windup toy slowly winding down,
Waiting for my B12 to come around,
Without it I am tired and bed bound.

After so much careful planning before I left Australia, I had to set off with only enough B12 to last me for about half the time I would be here. A combination of factors conspired against me... Australia Post delaying the delivery of the script to the Compounding Pharmacy, the Pharmacy not making it up straight away and finally, a Public Holiday the day before my flight.

I tried not to stress too much about it and just devised a plan B. First thing in the morning on the day I was to fly out of Sydney, I phoned the Pharmacy and arranged for the 4 vials I had ordered to be sent down to Melbourne. 

Next I organised a friend in Melbourne to have 2 of the vials sent over to me before I would need them. Unfortunately plan B has now turned into no plan at all.

They were sent a little late but I wasn't too concerned. I am now though, for although they went express with DHL, in a Styrofoam esky with an ice pack, they are being held up in LA. 

Over the past couple of days many emails and paperwork has been sent. Photocopies of everything including my Passport. The latest email says it may be another 2-4 working days before the are cleared and sent on.

So much for "Express", I was told it would take three days and I was even worried about it taking that long! The ice would have long melted by now and the potency of the vials compromised.

I have been without any B12 for over a week now and I feel as though each day I am slipping further and further down. The last two days have been "bed days".

My daughter took me to a local Pharmacy this evening and I talked with the Pharmacist but could only buy tablets which are a different type of B12 and have a significantly lower potency.

I won't be able to take any until the morning as they would likely keep me awake all night.

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